Make My Day, Machu Picchu, the Finale
When you’re on the side of a mountain in the middle of a range chock full of them, dusk turns to darkness in an instant. We were on Hour 6 of our 4 hour hike, our large group of 25 people, was now two...
View ArticleCold Hands, Warm Harddrive
As this tenacious disease continues to attack my body I am forced to rely on others for so much of my day-to-day life. Accepting this was extremely difficult in the beginning but I have learned to not...
View ArticleSense and Sensitivity
I fully understand the challenges ahead of my team at A Life Story Foundation as we try to raise awareness and create action around the horrible disease that is ALS. This challenge was never clearer...
View Article5 Reasons Why the Ice Bucket Challenge Will Find a Cure
5. We are having our Magic Johnson moment. When the basket legend announced that he was HIV positive, he instantly brought the disease into every home in America. Overnight, everyone knew someone with...
View ArticleWheel Life Changes
There are so many scary life experiences and dramatic changes that lie ahead of anyone diagnosed with ALS. When you are at your earliest symptom, which may be as innocent as a twitching finger, the...
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The Most Deserving Sportsman of the Year
This summer, baseball celebrated the 75th anniversary of Lou Gehrig’s Luckiest Man in the World speech. Seventy-five years since the man who never missed a game was mysteriously afflicted by...
View ArticleJust a Lil’ Potty Talk
Anyone who is familiar with ALS knows that it is tenacious and a master thief. It robs its victims of the physical use of their bodies, but maybe even more damaging is how it rapidly steals away...
View ArticleI Am Not Free to Move About the Cabin
We have all been there before. White knuckles wrapped around the steering wheel, constant glances at the clock, turning down the radio while you go over your mental packing list. That frantic ride to...
View ArticleA Breathtaking View 100 Ft Below Ground
After living in New York City for almost 7 years, I feel like I am very familiar with most neighborhoods and certainly the many iconic buildings throughout Manhattan…or so I thought. I recently visited...
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Advocates Come In All Different Shapes… And Sizes
This is a perfect example of how a movement begins. Awareness can start with one person, even an 8 year old. We are so proud of Vivian and grateful for her effort and dedication.
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